Tag Archives: research data management

Walking the talk- reflections on working ‘openly’

As part of Open Access Week 2016, the Office of Scholarly Communication is publishing a series of blog posts on open access and open research. In this post Dr Lauren Cadwallader discusses her experience of researching openly.

Earlier this year I was awarded the first Altmetric.com Annual Research grant to carry out a proof-of-concept study looking at using altmetrics as a way of identifying journal articles that eventually get included into a policy document. As part of the grant condition I am required to share this work openly. “No problem!” I thought, “My job is all about being open. I know exactly what to do.”

However, it’s been several years since I last carried out an academic research project and my previous work was carried out with no idea of the concept of open research (although I’m now sharing lots of it here!). Throughout my project I kept a diary documenting my reflections on being open (and researching in general) – mainly the mistakes I made along the way and the lessons I learnt. This blog summarises those lessons.

To begin at the beginning

I carried out a PhD at Cambridge not really aware of scholarly best practice. The Office of Scholarly Communication didn’t exist. There wasn’t anyone to tell me that I should share my data. My funder didn’t have any open research related policies. So I didn’t share because I didn’t know I could, or should, or why I would want to.

I recently attended The Data Dialogue conference and was inspired to hear many of the talks about open data but also realised that although I know some of the pitfalls researchers fall into I don’t quite feel equipped to carry out a project and have perfectly open and transparent methods and data at the end. Of course, if I’d been smart enough to attend an RDM workshop before starting my project I wouldn’t feel like this!

My PhD supervisor and the fieldwork I carried out had instilled in me some practices that are useful to carrying out open research:.

Lesson #1. Never touch your raw data files

This is something I learnt from my PhD and found easy to apply here. Altmetric.com sent me the data I requested for my project and I immediately saved it as the raw file and saved another version as my working file. That made it easy when I came to share my files in the repository as I could include the raw and edited data. Big tick for being open.

Getting dirty with the data

Lesson #2. Record everything you do

Another thing I was told to do during my PhD lab work was to record everything you do. And that is all well and good in the lab or the field but what about when you are playing with your data? I found I started cleaning up the spreadsheet Altmetric.com sent and I went from having 36 columns to just 12 but I hadn’t documented my reasons for excluding large swathes of data. So I took a step back and filled out my project notebook explaining my rationale. Documenting every decision at the time felt a little bit like overkill but if I need to articulate my decisions for excluding data from my analysis in the future (e.g. during peer review) then it would be helpful to know what I based my reasoning on.

Lesson #3. Date things. Actually, date everything

I’d been typing up my notes about why some data is excluded and others not so it informs my final data selection and I’d noticed that I’d been making decisions and notes as I go along but not recording when. If I’m trying to unpick my logic at a later date it is helpful if I know when I made a decision. Which decision came first? Did I have all my ‘bright ideas’ on the same day and now the reason they don’t look so bright is was because I was sleep deprived (or hungover in the case of my student days) and not thinking straight. Recording dates is actually another trick I learnt as a student – data errors can be picked up as lab or fieldwork errors if you can work back and see what you did when – but have forgotten to apply thus far. In fact, it was only at this point that I began dating my diary entries…

Lesson #4. A tidy desk(top) is a tidy mind

Screen Shot 2016-10-24 at 13.21.11I was working on this project just one day a week over the summer so every week I was having to refresh my mind as to where I stopped the week before and what my plans were that week. I was, of course, now making copious notes about my plans and dating decisions so this was relatively easy. However, upon returning from a week’s holiday, I opened my data files folder and was greeted by 10 different spreadsheets and a few other files. It took me a few moments to work out which files I needed to work on, which made me realise I needed to do some housekeeping.

Aside from making life easier now, it will make the final write up and sharing easier if I can find things and find the correct version. So I went from messy computer to tidy computer and could get back to concentrating on my analysis rather than worrying if I was looking at the right spreadsheet.

 

Lesson #5. Version control

One morning I had been working on my data adding in information from other sources and everything was going swimmingly when I realised that I hadn’t included all of my columns in my filters and now my data was all messed up. To avoid weeping in my office I went for a cup of tea and a biscuit.

Upon returning to my desk I crossed my fingers and managed to recover an earlier version of my spreadsheet using a handy tip I’d found online. Phew! I then repeated my morning’s work. Sigh. But at least my data was once again correct. Instead of relying on handy tips discovered by frantic Googling, just use version control. Archive your files periodically and start working on a new version. Tea and biscuits cannot solve everything.

Getting it into the Open

After a couple more weeks of problem free analysis it was time to present my work as a poster at the 3:AM Altmetrics conference. I’ve made posters before so that was easy. It then dawned on me at about 3pm the day I needed to finish the poster that perhaps I should share a link to my data. Cue a brief episode of swearing before realising I sit 15ft away from our Research Data Advisor and she would help me out! After filling out the data upload form for our institutional repository to get a placeholder record and therefore DOI for my data, I set to work making my spreadsheet presentable.

Lesson #6. Making your data presentable can be hard work if you are not prepared

I only have a small data set but it took me a lot longer than I thought it would to make it sharable. Part of me was tempted just to share the very basic data I was using (the raw file from Altmetric.com plus some extra information I had added) but that is not being open to reproducibility. People need to be able to see my workings so I persevered.

I’d labelled the individual sheets and the columns within those sheets in a way that was intelligible to me but not necessarily to other people so they all needed renaming. Then I had to tidy up all the little notes I’d made in cells and put those into a Read Me file to explain some things. And then I had to actually write the Read Me file and work out the best format for it (a neutral text file or pdf is best).

I thought I was finished but as our Research Data Advisor pointed out, my spreadsheets were returning a lot of errors because of the formula I was using (it was taking issue with me asking it to divide something by 0) and that I should share one file that included the formulae and one with just the numbers.

If I’d had time, I would have gone for a cup of tea and a biscuit to avoid weeping in the office but I didn’t have time for tea or weeping. Actually producing a spreadsheet without formulae turned out to be simple once I’d Googled how to do it and then my data files were complete. All I then needed to do was send them to the Data team and upload a pdf of my poster to the repository. Job done! Time to head to the airport for the conference!

Lesson #7. Making your work open is very satisfying.

Just over three weeks have passed since the conference and I’m amazed that already my poster has been viewed on the repository 84 times and my data has been viewed 153 times! Wowzers! That truly is very satisfying and makes me feel that all the effort and emergency cups of tea were worth it. As this was a proof-of-concept study I would be very happy for someone to use my work, although I am planning to keep working on it. Seeing the usage stats of my work and knowing that I have made it open to the best of my ability is really encouraging for the future of this type of research. And of course, when I write these results up with publication in mind it will be as an open access publication.

But first, it’s time for a nice relaxed cup of tea.

Published 25 October 2016
Written by Dr Lauren Cadwallader
Creative Commons License

Making the connection: research data network workshop

During International Data Week 2016, the Office of Scholarly Communication is celebrating with a series of blog posts about data. The first post was a summary of an event we held in July. This post looks at the challenges associated with financially supporting RDM training.

corpus-main-hallFollowing the success of hosting the Data Dialogue: Barriers to Sharing event  in July we were delighted to welcome the Research Data Management (RDM) community to Cambridge for the second Jisc research data network workshop. The event was held in Corpus Christi College with meals held in the historical dining room. (Image: Corpus Christi )

RDM services in the UK are maturing and efforts are increasingly focused on connecting disparate systems, standardising practices and making platforms more usable for researchers. This is also reflected in the recent Concordat on Research Data which links the existing statements from funders and government, providing a more unified message for researchers.

The practical work of connecting the different systems involved in RDM is being led by the Jisc Research Data Shared Services project which aims to share the cost of developing services across the UK Higher Education sector. As one of the pilot institutions we were keen to see what progress has been made and find out how the first test systems will work. On a personal note it was great to see that the pilot will attempt to address much of the functionality researchers request but that we are currently unable to fully provide, including detailed reporting on research data, links between the repository and other systems, and a more dynamic data display.

Context for these attempts to link, standardise and improve RDM systems was provided in the excellent keynote by Dr Danny Kingsley, head of the Office of Scholarly Communication at Cambridge, reminding us about the broader need to overhaul the reward systems in scholarly communications. Danny drew on the Open Research blogposts published over the summer to highlight some of the key problems in scholarly communications: hyperauthorship, peer review, flawed reward systems, and, most relevantly for data, replication and retraction. Sharing data will alleviate some of these issues but, as Danny pointed out, this will frequently not be possible unless data has been appropriately managed across the research lifecycle. So whilst trying to standardise metadata profiles may seem irrelevant to many researchers it is all part of this wider movement to reform scholarly communication.

Making metadata work

Metadata models will underpin any attempts to connect repositories, preservation systems, Current Research Information Systems (CRIS), and any other systems dealing with research data. Metadata presents a major challenge both in terms of capturing the wide variety of disciplinary models and needs, and in persuading researchers to provide enough metadata to make preservation possible without putting them off sharing their research data. Dom Fripp and Nicky Ferguson are working on developing a core metadata profile for the UK Research Data Discovery Service. They spoke about their work on developing a community-driven metadata standard to address these problems. For those interested (and Git-Hub literate) the project is available here.

They are drawing on national and international standards, such as the Portland Common Data Model, trying to build on existing work to create a standard which will work for the Shared Services model. The proposed standard will have gold, silver and bronze levels of metadata and will attempt to reward researchers for providing more metadata. This is particularly important as the evidence from Dom and Nicky’s discussion with researchers is that many researchers want others to provide lots of metadata but are reluctant to do the same themselves.

We have had some success with researchers filling in voluntary metadata fields for our repository, Apollo, but this seems to depend to a large extent on how aware researchers are of the role of metadata, something which chimes with Dom and Nicky’s findings. Those creating metadata are often unaware of the implications of how they fill in fields, so creating consistency across teams, let alone disciplines and institutions can be a struggle. Any Cambridge researchers who wish to contribute to this metadata standard can sign up to a workshop with Jisc in Cambridge on 3rd October.

Planning for the long-term

A shared metadata standard will assist with connecting systems and reducing researchers’ workload but if replicability, a key problem in scholarly communications, is going to be possible digital preservation of research data needs to be addressed. Jenny Mitcham from the University of York presented the work she has been undertaking alongside colleagues from the University of Hull on using Archivematica for preserving research data and linking it to pre-existing systems (more information can be found on their blog.)

Jenny highlighted the difficulties they encountered getting timely engagement from both internal stakeholders and external contractors, as well as linking multiple systems with different data models, again underlining the need for high quality and interoperable metadata. Despite these difficulties they have made progress on linking these systems and in the process have been able to look into the wide variety of file formats currently in use at York. This has lead to conversations with the National Archive about improving the coverage of research file formats in PRONOM (a registry of file formats for preservation purposes), work which will be extremely useful for the Shared Services pilot.

In many ways the project at York and Hull felt like a precursor to the Shared Services pilot; highlighting both the potential problems in working with a wide range of stakeholders and systems, as well as the massive benefits possible from pooling our collective knowledge and resources to tackle the technical challenges which remain in RDM.

Published 14 September 2016
Written by Rosie Higman
Creative Commons License

Beyond compliance – dialogue on barriers to data sharing

Welcome to International Data Week. The Office of Scholarly Communication is celebrating with a series of blog posts about data, starting with a summary of an event we held in July.

JME_0629.jpgOn 29 July 2016 the Cambridge Research Data Team joined forces with the Science and Engineering South Consortium to organise a one day conference at the Murray Edwards College to gather researchers and practitioners for a discussion about the existing barriers to data sharing. The whole aim of the event was to move beyond compliance with funders’ policies. We hoped that the community was ready to change the focus of data sharing discussions from whether it is worth sharing or not towards more mature discussions about the benefits and limitations of data sharing.

What are the barriers?

So what are the barriers to effective sharing of research data? There were three main barriers identified, all somewhat related to each other: poorly described data, insufficient data discoverability and difficulties with sharing personal/sensitive data. All of these problems arise from the fact that research data does not always shared in accordance to FAIR principles: that data is Findable, Accessible, Interoperable and Re-usable.

Poorly described data

The event started with an inspiring keynote talk from Dr Nicole Janz from the Department of Sociology at the University of Cambridge: “Transparency in Social Science Research & Teaching”. Nicole regularly runs replication workshops at Cambridge, where students select published research papers and they work hard for several weeks to reproduce the published findings. The purpose of these workshop is to allow students to learn by experience on what is important in making their own work transparent and reproducible to others.

Very often students fail to reproduce the results. Frequently, the reasons for failures are insufficient methodology available, or simply the fact that key datasets were not made available. Students learn that in order to make research reproducible, one not only needs to make the raw data files available, but that the data needs to be shared with the source code used to transform it and with written down methodology of the process, ideally in a README file. While doing replication studies, students also learn about the five selfish benefits of good data management and sharing: data disasters are avoided, it is easier to write up papers from well-managed data, transparent approach to sharing makes the work more convincing to reviewers, the continuity of research is possible and researchers can build their reputation for being transparent. As a tip for researchers, Nicole suggested always asking a colleague to try to reproduce the findings before submitting a paper for peer-review.

The problem of insufficient data description/availability was also discussed during the first case study talk by Dr Kai Ruggeri from the Department of Psychology, University of Cambridge. Kai reflected on his work on the assessment of happiness and wellbeing across many European countries, which was part of the ESRC Secondary Data Analysis Initiative. Kai re-iterated that missing data make the analysis complicated and sometimes prevent one from being able to make effective policy recommendations. Kai also stressed that frequently the choice of baseline for data analysis can affect the final results. Therefore, proper description of methodology and approaches taken is key for making research reproducible.

Insufficient data discoverability

JME_0665We also heard several speakers describing problems with data discoverability. Fiona Nielsen founded Repositive – a platform for finding human genomic data. Fiona founded the platform out of frustration that genomic data was so difficult to find and access. Proliferation of data repositories made it very hard for researchers to actually find what they need.

IMG_SearchingForData_20160911Fiona started with doing a quick poll among the audience: how do researchers look for data? It turned out that most researchers find data by doing a literature research or by googling for it. This is not surprising – there is no search engine enabling looking for information simultaneously across the multiple repositories where the data is available. To make it even more complicated, Fiona reported that in 2015 80PB of human genomic data was generated. Unfortunately, only 0.5PB of human genomic data was made available in a data repository.

So how can researchers find the other datasets, which are not made available in public repositories? Repositive is a platform harvesting metadata from several repositories hosting human genomic data and providing a search engine allowing researchers to simultaneously look for datasets shared in all of them. Additionally, researchers who cannot share their research data via a public repository (for example, due to lack of participants’ consent for sharing), can at least create a metadata record about the data – to let others know that the data exist and to provide them with information on data access procedure.

The problem of data discoverability is however not only related to people’s awareness that datasets exists. Sometimes, especially in the case of complex biological data with a vast amount of variables, it can be difficult to find the right information inside the dataset. In an excellent lightening talk, Jullie Sullivan from the University of Cambridge described InterMine –platform to make biological data easily searchable (‘mineable’). Anyone can simply upload their data onto the platform to make it searchable and discoverable. One example of the platform’s use is FlyMine – database where researchers looking for results of experiments conducted on fruit fly can easily find and share information.

Difficulties with sharing personal/sensitive data

The last barrier to sharing that we discussed was related to sharing personal/sensitive research data. This barrier is perhaps the most difficult one to overcome, but here again the conference participants came up with some excellent solutions. First one came from the keynote speech by Louise Corti – with a talk with a very uplifting title: “Personal not painful: Practical and Motivating Experiences in Data Sharing”.

Louise based her talk on the long experience of the UK Data Service with providing managed access to data containing some forms of confidential/restricted information. Apart from being able to host datasets which can be made openly available, the UKDS can also provide two other types of access: safeguarded access, where data requestors need to register before downloading the data, and controlled data, where requests for data are considered on a case by case basis.

At the outset of the research project, researchers discuss their research proposals with the UKDS, including any potential limitations to data sharing. It is at this stage – at the outset of the research project, that the decision is made on the type of access that will be required for the data to be successfully shared. All processes of project management and data handling, such as data anonymisation and collection of informed consent forms from study participants, are then carried in adherence to that decision. The UKDS also offers protocols clarifying what is going to happen with research data once they are deposited with the repository. The use of standard licences for sharing make the governance of data access much more transparent and easy to understand, both from the perspective of data depositors and data re-users.

Louise stressed that transparency and willingness to discuss problems is key for mutual respect and understanding between data producers, data re-users and data curators. Sometimes unnecessary misunderstandings make data sharing difficult, when it does not need to be. Louise mentioned that researchers often confuse ‘sensitive topic’ with ‘sensitive data’ and referred to a success case study where, by working directly with researchers, UKDS managed to share a dataset about sedation at the end of life. The subject of study was sensitive, but because the data was collected and managed with the view of sharing at the end of the project, the dataset itself was not sensitive and was suitable for sharing.

As Louise said “data sharing relies on trust that data curators will treat it ethically and with respect” and open communication is key to build and maintain this trust.

So did it work?

JME_0698The purpose of this event was to engage the community in discussions about the existing limitation to data sharing. Did we succeed? Did we manage to engage the community? Judging by the fact that we have received twenty high quality abstract applications from researchers across various disciplines for only five available case study speaking slots (it was so difficult to shortlist the top five ones!) and also because the venue was full – with around eighty attendees from Cambridge and other institutions, I think that the objective was pretty well met.

Additionally, the panel discussion was led by researchers and involved fifty eight active users on the Sli.do platform for questions to panellists. There were also questions asked outside of Sli.do platform. So overall I feel that the event was a great success and it was truly fantastic to be part of it and to see the degree of participant involvement in data sharing.

Another observation is also the great progress of the research community in Cambridge in the area of sharing: we have successfully moved away from discussions whether research data is worth sharing to how to make data sharing more FAIR.

It seems that our intense advocacy, and the effort of speaking with over 1,800 academics from across the campus since January 2015 paid off and we have indeed managed to build an engaged research data management community.

Read (and see!) more:

Published 12 September 2016
Written by Dr Marta Teperek
Creative Commons License

Could Open Research benefit Cambridge University researchers?

This blog is part of the recent series about Open Research and reports on a discussion with Cambridge researchers  held on 8 June 2016 in the Department of Engineering. Extended notes from the meeting and slides are available at the Cambridge University Research Repository. This report is written by  Lauren Cadwallader, Joanna Jasiewicz and Marta Teperek (listed alphabetically by surname).

At the Office of Scholarly Communication we have been thinking for a while about Open Research ideas and about moving beyond mere compliance with funders’ policies on Open Access and research data sharing. We thought that the time has come to ask our researchers what they thought about opening up the research process and sharing more: not only publications and research data, but also protocols, methods, source code, theses and all the other elements of research. Would they consider this beneficial?

Working together with researchers – democratic approach to problem-solving

To get an initial idea of the expectations of the research community in Cambridge, we organised an open discussion hosted at the Department of Engineering. Anyone registering was asked three questions:

  • What frustrates you about the research process as it is?
  • Could you propose a solution that could solve that problem?
  • Would you be willing to speak about your ideas publicly?

20160608_163000Interestingly, around fifty people registered to take part in the discussion and almost all of them contributed very thought-provoking problems and appealing solutions. To our surprise, half of the people expressed their will to speak publicly about their ideas. This shaped our discussion on the day.

So what do researchers think about Open Research? Not surprisingly, we started from an animated discussion about unfair reward systems in academia.

Flawed metrics

A well-worn complaint: the only thing that counts in academia is publication in a high impact journal. As a result, early career researchers have no motivation to share their data and to publish their work in open access journals, which can sometimes have lower impact factors. Additionally, metrics based on the whole journal do not reflect the importance of the research described: what is needed is article-level impact measurements. But it is difficult to solve this systemic problem because any new journal which wishes to introduce a new metrics system has no journal-level impact factor to start with, and therefore researchers do not want to publish in it.

Reproducibility crisis: where quantity, not quality, matters

Researchers also complained that the volume of produced research is higher and higher in terms of quantity and science seems to have entered an ‘era of quantity’. They raised the concern that the quantity matters more than the quality of research. Only the fast and loud research gets rewarded (because it is published in high impact factor journals), and the slow and careful seems to be valued less. Additionally, researchers are under pressure to publish and they often report what they want to see, and not what the data really shows. This approach has led to the reproducibility crisis and lack of trust among researchers.

Funders should promote and reward reproducible research

The participants had some good ideas for how to solve these problems. One of the most compelling suggestions was that perhaps funding should go not only to novel research (as it seems to be at the moment), but also to people who want to reproduce existing research. Additionally, reproducible research itself should be rewarded. Funders could offer grant renewal schemes for researchers whose research is reproducible.

Institutions should hire academics committed to open research

Another suggestion was to incentivise reward systems other than journal impact factor metrics. Someone proposed that institutions should not only teach the next generation of researchers how to do reproducible research, but also embed reproducibility of research as an employment criteria. Commitment to Open Research could be an essential requirement in job description. Applicants could be asked at the recruitment stage how they achieve the goals of Open Research. LMU University in Munich had recently included such a statement in a job description for a professor of social psychology (see the original job description here and a commentary here).

Academia feeding money to exploitative publishers

Researchers were also frustrated by exploitative publishers. The big four publishers (Elsevier, Wiley, Springer and Informa) have a typical annual profit margin of 37%. Articles are donated to the publishers for free by the academics, and reviewed by other academics, also free of charge. Additionally, noted one of the participants, academics also act as journal editors, which they also do for free.

[*A comment about this statement was made on 15 August 2017 noting that some editors do get paid. While the participant’s comment stands as a record of what was said, we acknowledge that this is not an entirely accurate statement.]

In addition to this, publishers take away the copyright from the authors. As a possible solution to the latter, someone suggested that universities should adopt institutional licences on scholarly publishing (similar to the Harvard licence) which could protect the rights of their authors

Pre-print services – the future of publishing?

Could Open Research aid the publishing crisis? Novel and more open ways of publishing can certainly add value to the process. The researchers discussed the benefits of sharing pre-print papers on platforms like arXiv and bioRxiv. These services allow people to share manuscripts before publication (or acceptance by a journal). In physics, maths and computational sciences it is common to upload manuscripts even before submitting the manuscript to a journal in order to get feedback from the community and have the chance to improve the manuscript.

bioRxiv, the life sciences equivalent of arXiv, started relatively recently. One of our researchers mentioned that he was initially worried that uploading manuscripts into bioRxiv might jeopardise his career as a young researcher. However, he then saw a pre-print manuscript describing research similar to his published on bioRxiv. He was shocked when he saw how the community helped to change that manuscript and to improve it. He has since shared a lot of his manuscripts on bioRxiv and as his colleague pointed out, this has ‘never hurt him’. To the contrary, he suggested that using pre-print services promotes one’s research: it allows the author to get the work into the community very early and to get feedback. And peers will always value good quality research and the value and recognition among colleagues will come back to the author and pay back eventually.

Additionally, someone from the audience suggested that publishing work in pre-print services provides a time-stamp for researchers and helps to ensure that ideas will not be scooped by anyone – researchers are free to share their research whenever they wish and as fast they wish.

Publishers should invest money in improving science – wishful thinking?

It was also proposed that instead of exploiting academics, publishers could play an important role in improving the research process. One participant proposed a couple of simple mechanisms that could be implemented by publishers to improve the quality of research data shared:

  • Employment of in-house data experts: bioinfomaticians or data scientists, who could judge whether supporting data is of a good enough quality
  • Ensure that there is at least one bioinfomatician/data scientist on the reviewing panel for a paper
  • Ask for the data to be deposited in a public, discipline-specific repository, which would ensure quality control of the data and adherence to data standards.
  • Ask for the source code and detailed methods to be made available as well.

Quick win: minimum requirements for making shared data useful

A requirement that, as a minimum, three key elements should be made available with publications – the raw data, the source code and the methods – seems to be a quick win solution to make research data more re-usable. Raw data is necessary as it allows users to check if the data is of a good quality overall, while publishing code is important to re-run the analysis and methods need to be detailed enough to allow other researchers to understand all the processes involved in data processing. An excellent case study example comes from Daniel MacArthur who has described how to reproduce all the figures in his paper and has shared the supporting code as well.

It was also suggested that the Office of Scholarly Communication could implement some simple quality control measures to ensure that research data supporting publications is shared. As a minimum the Office could check the following:

  • Is there a data statement in the publication?
  • If there is a statement – is there a link to the data?
  • Does the link work?

This is definitely a very useful suggestion from our research community and in fact we have already taken this feedback aboard and started checking for data citations in Cambridge publications.

Shortage of skills: effective data sharing is not easy

The discussion about the importance of data sharing led to reflections that effective data sharing is not always easy. A bioinformatician complained that datasets that she had tried to re-use did not satisfy the criteria of reproducibility, nor re-usability. Most of the time there was not enough metadata available to successfully use the data. There is some data shared, there is the publication, but the description is insufficient to understand the whole research process: the miracle, or the big discovery, happens somewhere in the middle.

Open Research in practice: training required

Attendees agreed that it requires effort and skills to make research open, re-usable and discoverable by others. More training is needed to ensure that researchers are equipped with skills to allow them to properly use the internet to disseminate their research, as well as with skills allowing them to effectively manage their research data. It is clear that discipline-specific training and guidance around how to manage research data effectively and how to practise open research is desired by Cambridge researchers.

Nudging researchers towards better data management practice

Many researchers have heard or experienced first-hand horror stories of having to follow up on somebody else’s project, where it was not possible to make any sense of the research data due to lack of documentation and processes. This leads to a lot of time wasted in every research group. Research data need to be properly documented and maintained to ensure research integrity and research continuity. One easy solution is to nudge researchers towards better research data management practice could be formalised data management requirements. Perhaps as a minimum, every researchers should have a lab book to document research procedures.

The time is now: stop hypocrisy

Finally, there was a suggestion that everyone should take the lead in encouraging Open Research. The simplest way to start is to stop being what has been described as a hypocrite and submit articles to journals which are fully Open Access. This should be accompanied by making one’s reviews openly available whenever possible. All publications should be accompanied by supporting research data and researchers should ensure that they evaluate individual research papers and that their judgement is not biased by the impact factor of the journal.

Need for greater awareness and interest in publishing

One of the Open Access advocates present at the meeting stated that most researchers are completely unaware of who are the exploitative and ethical publishers and the differences between them. Researchers typically do not directly pay the exploitative publishers and are therefore not interested in looking at the bigger picture of sustainability of scholarly publishing. This is clearly an area when more training and advocacy can help and the Office of Scholarly Communication is actively involved in raising awareness in Open Access. However, while it is nice to preach in a room of converts, how do we get other researchers involved in Open Access? How should we reach out to those who can’t be bothered to come to a discussion like the one we had? This is the area where anyone who understands the benefits Open Access has a job to do.

Next steps

We are extremely grateful to everyone who came to the event and shared their frustrations and ideas on how to solve some problems. We noted all the ideas on post it notes – the number of notes at the end of the discussion was impressive, an indication of how creative the participants were in just 90 minutes. It was a very productive meeting and we wish to thank all the participants for their time and effort.

20160608_160721

We think that by acting collaboratively and supporting good ideas we can achieve a lot. As an inspiration, McGill University’s Montreal Neurological Institute and Hospital (the Neuro) in Canada have recently adopted a policy on Open Research: over the next five years all results, publications and data will be free to access by everyone.

Follow up

If you would like to host similar discussions directly in your departments/institutes, please get in touch with us at info@osc.cam.ac.uk – we would be delighted to come over and hear from researchers in your discipline.

In the meantime, if you have any additional ideas that you wish to contribute, please send them to us. Everyone who is interested in being informed about the progress here is encouraged to sign up for a mailing distribution list here.

Extended notes from the meeting and slides are available at the Cambridge University Research Repository. We are particularly grateful to Avazeh Ghanbarian, Corina Logan, Ralitsa Madsen, Jenny Molloy, Ross Mounce and Alasdair Russell (listed alphabetically by surname) for agreeing to publicly speak at the event.

Published 3 August 2016
Written by Lauren Cadwallader, Joanna Jasiewicz and Marta Teperek
Creative Commons License

Show me the money – the path to a sustainable Research Data Facility

Like many institutions in the UK, Cambridge University has responded to research funders’ requirements for data management and  sharing with a concerted effort to support our research community in good data management and sharing practice through our Research Data Facility. We have written a few times on this blog and presented to describe our services. This blog is a description of the process we have undertaken to support these services in the long term.

Funders expect  that researchers make the data underpinning their research available and provide a link to this data in the paper itself. The EPSRC started checking compliance with their data sharing requirement on 1 May 2015. When we first created the Research Data Facility we spoke to many researchers across the institution and two things became very clear. One was that there was considerable confusion about what actually counts as data, and the second was that sharing data on publication is not something that can be easily done as an afterthought if the data was not properly managed in the first place.

We have approached these issues separately. To try and determine what is actually required from funders beyond the written policies we have invited representatives from our funders to come to discussions and forums with our researchers to work out the details. So far we have hosted Ben Ryan from the EPSRC, Michael Ball from the BBSRC and most recently David Carr and Jamie Enoch from the Wellcome Trust and CRUK respectively.

Dealing with the need for awareness of research data management has been more complex. To raise awareness of good practice in data management and sharing we embarked on an intense advocacy programme and in the past 15 months have organised 71 information sessions about data sharing (speaking with over 1,700 researchers). But we also needed to ensure the research community was managing its data from the beginning of the research process. To assist this we have developed workshops on various aspects of data management (hosting 32 workshops in the past year), a comprehensive website, a service to support researchers with their development of their research data management plans and a data management consultancy service.

So far, so good. We have had a huge response to our work, and while we encourage researchers to use the data repository that best suits their material, we do offer our institutional repository Apollo as an option. We are as of today, hosting 499 datasets in the repository. The message is clearly getting through.

Sustainability

The word sustainability (particularly in the scholarly communication world) is code for ‘money’. And money has become quite a sticking point in the area of data management. The way Cambridge started the Research Data Facility was by employing a single person, Dr Marta Teperek for one year, supported by the remnants of the RCUK Transition Fund. It became quickly obvious that we needed more staff to manage the workload and now the Facility employs half an Events and Outreach Coordinator and half a Repository Manager plus a Research Data Adviser who looks after the bulk of the uploading of data sets into the repository.

Clearly there was a need to work out the longer term support for staffing the Facility – a service for which there are no signs of demand slowing. Early last year we started scouting around for options.  In April 2013 the RCUK released some guidance that said it was permissible to recover costs from grants through direct charges or overheads – but noted institutions could not charge twice. This guidance also mentioned that it was permissible for institutions to recover costs of RDM Facilities as other Small Research Facilities, “provided that such facilities are transparently charged to all projects that use them”.

Transparency

On the basis of that advice we established a Research Data Facility as a Small Research Facility according to the Transparent Approach to Costing (TRAC) methodology. Our proposal was that Facility’s costs will be recovered from grants as directly allocated costs. We chose this option rather than overheads because of the advantage of transparency to the funder of our activities. By charging grants this way it meant a bigger advocacy and education role for the Facility. But the advantage is that it would make researchers aware that they need to consider research data management seriously, that this involves both time and money, and that it is an integral part of a grant proposal.

Dr Danny Kingsley has argued before (for example in a paper ‘Paying for publication: issues and challenges for research support services‘) that by centralising payments for article processing charges, the researchers remain ignorant of the true economics of the open access system in the way that they are generally unaware of the amounts spent on subscriptions. If we charged the costs of the Facility into overheads, it becomes yet another hidden cost and another service that ‘magically’ happens behind the scenes from the researcher’s point of view.

In terms of the actual numbers, direct costs of the Research Data Facility included salaries for 3.2 FTEs (a Research Data Facility Manager, Research Data Adviser, 0.5 Outreach and Engagement Coordinator, 0.5 Repository Manager, 0.2 Senior Management time), hardware and hardware maintenance costs, software licences, costs of organising events as well as the costs of staff training and conference attendance. The total direct annual cost of our Facility was less than £200,000. These are the people cost of the Facility and are not to be confused with the repository costs (for which we do charge directly).

Determining how much to charge

Throughout this process we have explored many options for trying to assess a way of graduating the costing in relation to what support might be required. Ideally, we would want to ensure that the Facility costs can be accurately measured based on what the applicant indicated in their data management plan. However, not all funders require data management plans. Additionally, while data management plans provide some indication of the quantity of data (storage) to be generated, they do not allow a direct estimate of the amount of data management assistance required during the lifetime of the grant. Because we could not assess the level of support required for a particular research project from a data management plan, we looked at an alternative charging strategy.

We investigated charging according to the number of people on a team, given that the training component of the Facility is measurable by attendees to workshops. However, after investigation we were unable to easily extract that type of information about grants and this also created a problem for charging for collaborative grants. We then looked at charging a small flat charge on every grant requiring the assistance of the Facility and at charging proportionally to the size (percentage of value) of the grant. Since we did not have any compelling evidence that bigger grants require more Facility assistance, we proposed a model of flat charging on all grants, which require Facility assistance. This model was also the most cost-effective from an administrative point of view.

As an indicator of the amount of work involved in the development of the Business Case, and the level of work and input that we have received relating to it, the document is now up to version 18 – each version representing a recalculation of the costings.

Collaborative process

A proposal such as we were suggesting – that we charge the costs of the Facility as a direct charge against grants – is reasonably radical. It was important that we ensure the charges would be seen as fair and reasonable by the research community and the funders. To that end we have spent the best part of a year in conversation with both communities.

Within the University we had useful feedback from the Open Access Project Board (OAPB) when we first discussed the option in July last year. We are also grateful to the members of our community who subsequently met with us in one on one meetings to discuss the merits of the Facility and the options for supporting it. At the November 2015 OAPB meeting, we presented a mature Business Case. We have also had to clear the Business Case through meetings of the Resource Management Committee (RMC).

Clearly we needed to ensure that our funders were prepared to support our proposal. Once we were in a position to share a Business Case with the funders we started a series of meetings and conversations with them.

The Wellcome Trust was immediate in its response – they would not allow direct charging to grants as they consider this to be an overhead cost, which they do not pay. We met with Cancer Research UK (CRUK) in January 2016 and there was a positive response about our transparent approach to costing and the comprehensiveness of services that the Facility provides to researchers at Cambridge. These issues are now being discussed with senior management at CRUK and discussions with CRUK are still ongoing at the time of writing this report (May 2016). [Update 24 May: CRUK agreed to consider research data management costs as direct costs on grant applications on a case by case basis, if justified appropriately in the context of the proposed research].

We encourage open dialogue with the RCUK funders about data management. In May 2015 we invited Ben Ryan to come to the University to talk about the EPSRC expectations on data management and how Cambridge meets these requirements. In August 2015 Michael Ball from the BBSRC came to talk to our community. We had an indication from the RCUK that our proposal was reasonable in principle. Once we were in a position to show our Business Case to the RCUK we invited Mark Thorley to discuss the issue and he has been in discussion with the individual councils for their input to give us a final answer.

Administrative issues

Timing in a decision like this is challenging because of the large number of systems within the institution that would be affected if a change were to occur. In anticipation of a positive response we started the process of ensuring our management and financial systems were prepared and able to manage the costing into grants – to ensure that if a green light were given we would be prepared.  To that end we have held many discussions with the Research Office on the practicalities of building the costing into our systems to make sure the charge is easy to add in our grant costing tool. We also had numerous discussions on how to embed these procedures in their workflows for validating whether the Facility services are needed and what to do if researchers forget to add them. The development has now been done.

A second consideration is the necessity to ensure all of the administrative staff involved in managing research grants (at Cambridge this is a  group of over 100 people) are aware of the change and how to manage both the change to the grant management system and also manage the questions from their research community. Simultaneously we were also involved in numerous discussions with our invaluable TRAC team at the Finance Division at the University who helped us validate all the Facility costs (to ensure that none of the costs are charged twice) and establishing costs centres and workflows for recovering money from grants.

Meanwhile we have had to keep our Facility staff on temporary contracts until we are in a position to advertise the roles. There is a huge opportunity cost in training people up in this area.

Conclusion

As it happened, the RCUK has come back to us to say that we can charge this cost to grants but as an overhead rather than direct cost. Having this decision means we can advertise the positions and secure our staffing situation. But we won’t be needing the administrative amendments to the system, nor the advocacy programme.

It has been a long process given we began preparing the Business Case in March 2015. The consultation throughout the University and the engagement of our community (both research and funder) has given us an opportunity to discuss the issues of research data management more widely. It is a shame – from our perspective – that we will not be able to be transparent about the costs of managing data effectively.

The funders and the University are all working towards a shared goal – we are wanting a culture change towards more open research, including the sharing of research data. To achieve this we need a more aware and engaged research community on these matters.  There is much advocacy to do.

Published 8 May 2016
Written by Dr Danny Kingsley and Dr Marta Teperek
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Forget compliance. Consider the bigger RDM picture

The Office of Scholarly Communication sent Dr Marta Teperek, our Research Data Facility Manager to the  International Digital Curation Conference held in in Amsterdam on 22-25 February 2016. This is her report from the event.

Fantastic! This was my first IDCC meeting and already I can’t wait for next year. There was not only amazing content in high quality workshops and conference papers, but also a great opportunity to network with data professionals from across the globe. And it was so refreshing to set aside our UK problem of compliance with data sharing policies, to instead really focus on the bigger picture: why it is so important to manage and share research data and how to do it best.

Three useful workshops

The first day started really intensely – the plan was for one full day or two half-day workshops, but I managed to squeeze in three workshops in one day.

Context is key when it comes to data sharing

The morning workshop was entitled “A Context-driven Approach to Data Curation for Reuse” by Ixchel Faniel (OCLC), Elizabeth Yakel (University of Michigan), Kathleen Fear (University of Rochester) and Eric Kansa (Open Context). We were split into small groups and asked to decide what was the most important information about datasets from the re-user’s point of view. Would the re-user care about the objects themselves? Would s/he want to get hints about how to use the data?

We all had difficulties in arranging the necessary information in order of usefulness. Subsequently, we were asked to re-order the information according to the importance from the point of view of repository managers. And the take-home message was that for all of the groups the information about datasets required by the re-user was the not same as that required from the repository.

In addition, the presenters provided discipline-specific context based on interviews with researchers – depending on the research discipline, different information about datasets was considered the most important. For example, for zoologists, the information about specimen was very important, but it was of negligible importance to social scientists. So context is crucial for the collection of appropriate metadata information. Insufficient contextual information makes data not useful.

So what can institutional repositories do to address these issues? If research carried out within a given institution only covers certain disciplines, then institutional repositories could relatively easily contextualise metadata information being collected and presented for discovery. However, repositories hosting research from many different disciplines will find this much more difficult to address. For example, Cambridge repository has to host research spanning across particle physics, engineering, economics, archaeology, zoology, clinical medicine and many, many others. This makes it much more difficult (if not impossible) to contextualise the metadata.

It is not surprising that information most important from the repository’s point of view is different that the most important information required by the data re-users. In order to ensure that research data can be effectively shared and preserved in long term, repositories need to collect certain amount of administrative metadata: who deposited the data, what are the file formats, what are the data access conditions etc. However, repositories should collect as much administrative metadata as possible in an automated way. For example, if the user logs in to deposit data, all the relevant information about the user should be automatically harvested by feeds from human resources systems.

EUDAT – Pan-European infrastructure for research data

The next workshop was about EUDAT – the collaborative Pan-European infrastructure providing research data services, training and consultancy for researchers. EUDAT is an impressive project funded by Horizon2020 grant and it offers five different types of services to researchers:

  • B2DROP – a secure and trusted data exchange service to keep research data synchronized, up-to-date and easy to exchange with other researchers;
  • B2SHARE – service for storing and sharing small-scale research data from diverse contexts;
  • B2SAFE – service to safely store research data by replicating it and depositing at multiple trusted repositories (additional data backups);
  • B2STAGE – service to transfer datasets between EUDAT storage resources and high-performance computing (HPC) workspaces;
  • B2FIND – discovery service harvesting metadata from research data collections from EUDAT data centres and other repositories.

The project has a wide range of services on offer and is currently looking for institutions to pilot these services with. I personally think these are services which (if successfully implemented) would be of a great value to Pan-European research community.

However, I have two reservations about the project:

  • Researchers are being encouraged to use EUDAT’s platforms to collaborate on their research projects and to share their research data. However, the funding for the project runs out in 2018. EUDAT team is now investigating options to ensure the sustainability and future funding for the project, but what will happen to researchers’ data if the funding is not secured?
  • Perhaps if the funding is limited it would be more useful to focus the offering on the most useful services, which are not provided elsewhere. For example, another EC-funded project, Zenodo, already offers a user-friendly repository for research data; Open Science Framework offers a platform for collaboration and easy exchange of research data. Perhaps EUDAT could initially focus on developing services which are not provided elsewhere. For example, having a Pan-Europe service harvesting metadata from various data repositories and enabling data discovery is clearly much needed and would be extremely useful to have.

Jisc Shared RDM Services for UK institutions

I then attended the second half of Jisc workshop on shared Research Data Management services for UK institutions. The University of York and the University of Cambridge are two of 13 pilot institutions participating in the pilot. Jenny Mitcham from York and I gave presentations on our institutional perspectives on the pilot project: where we are at the moment and what are our key expectations from the pilot. Jenny gave an overview of an impressive work by her and her colleagues on addressing data preservation gaps at the University of York. Data preservation was one of the areas in which Cambridge hopes to get help from the Jisc RDM shared services project. Additionally, as we described before, Cambridge would greatly benefit from solutions for big data and for personal/sensitive data. My presentation from the session is available here.

Presentations were followed by breakout group discussions. Participants were asked to identify the areas of priorities for the Jisc RDM pilot. The top priority identified by all the groups seemed to be solutions for personal/sensitive data and for effective data access management. This was very interesting to me as at similar workshops held by Jisc in the UK, breakout groups prioritised interoperability with their existing institutional systems and cost-effectiveness. This could be one of the unforeseen effects of strict funders’ research data policies in the UK, which required institutions to provide local repositories to share research data.

As a result of these policies, many institutions were tasked with creating institutional data repositories from scratch in a very short time. Most of the UK universities now have institutional repositories which allow research data to be uploaded and shared. However, very few universities have their repositories well integrated with other institutional systems. Not having the policy pressure in non-UK countries perhaps allowed institutions to think more strategically about developing their RDM service provisions and ensure that developed services are well embedded within the existing institutional infrastructure.

Conference papers and posters

The two following days were full of excellent talks. My main problem was which sessions to attend: talking with other attendees I am aware that the papers presented at parallel sessions were also extremely useful. If the budget allows, I certainly think that it would be useful for more participants from each institution to attend the meeting to cover more parallel sessions.

Below are my main reflections from keynote talks.

Barend Mons – Open Science as a Social Machine

This was a truly inspirational talk, raising a lot of thought-provoking discussions. Barend started from a reflection that more and more brilliant brains, with more and more powerful computers and with billions of smartphones, created a single, interconnected social super-machine. This machine generates data – vast amount of data – which is difficult to comprehend and work with, unless proper tools are used.

Barend mentioned that with the current speed of new knowledge being generated and papers being published, it is simply impossible for human brains to assimilate the constantly expanding amount of new knowledge. Brilliant brains need powerful computers to process the growing amount of information. But in order for science to be accessible to computers, we need to move away from pdfs. Our research needs to be machine-readable. And perhaps if publishers do not want to support machine-readability, we need to move away from the current publishing model.

Barend also stressed that if data is to be useful and correctly interpretable, it needs to be accessible not only to machines, but also to humans, and that effort is needed to make data well described. Barend said that research data without proper metadata description is useless (if not harmful). And how to make research data meaningful? Barend proposed a very compelling solution: no more research grants should be awarded without 5% of money dedicated for data stewardship.

I could not agree more with everything that Barend said. I hope that research funders will also support Barend’s statement.

Andrew Sallans – nudging people to improve their RDM practice

Andrew started his talk from a reflection that in order to improve our researchers’ RDM practice we need to do better than talking about compliance and about making data open. How a researcher is supposed to make data accessible, if the data was not properly managed in the first place? The Open Science Framework has been created with three mission statements:

  • Technology to enable change;
  • Training to enact change;
  • Incentives to embrace change.

So what is the Open Science Framework (OSF)? It is an open source platform to support researchers during the entire research lifecycle: from the start of the project, through data creation, editing and sharing with collaborators and concluding with data publication. What I find the most compelling about the OSF is that is allows one to easily connect various storage platforms and places where researchers collaborate on their data in one place: researchers can easily plug their resources stored on Dropbox, Googledrive, GitHub and many others.

To incentivise behavioural change among researchers, the OSF team came up with two other initiatives:

Personally, I couldn’t agree more with Andrew that enabling good data management practice should be the starting point. We can’t expect researchers to share their research data if we have not helped them with providing tools and support for good data management. However, I am not so sure about the idea of cash rewards.

In the end researchers become researchers because they want to share the outcomes of their research with the community. This is the principle behind academic research – the only way of moving ideas forward is to exchange findings with colleagues. Do researchers need to be paid extra to do the right thing? I personally do not think so and I believe that whoever decides to pursue an academic career is prepared to share. And it is our task to make data management and sharing as easy as possible, and the use of OSF will certainly be of a great aid for the community.

Susan Halford – the challenge of big data and social research

The last keynote was from Susan Halford. Susan’s talk was again very inspirational and thought-provoking. She talked about the growing excitement around big data and how trendy it has become; almost being perceived as a solution to every problem. However, Susan also pointed out the problems with big data. Simply increasing the computational power and not fully comprehending the questions and the methodology used can lead to serious misinterpretations of results. Susan concluded that when doing big data research one has to be extremely careful about choosing proper methodology for data analysis, reflecting on both the type of data being collected, as well as (inter)disciplinary norms.

Again – I could not agree more. Asking the right question and choosing the right methodology are key to make the right conclusions. But are these problems new to big data research? I personally think that we are all quite familiar with these challenges. Questions about the right experimental design and the right methodology have been known to humankind since scientific method is used.

Researchers always needed to design studies carefully before commencing to do the experiments: what will be the methodology, what are the necessary controls, what should be the sample size, what needs to happen for the study to be conclusive? To me this is not a problem of big data, to me this is a problem that needs to be addressed by every researcher from the very start of the project, regardless of the amount of data the project generates or analyses.

Birds of a Feather discussions

I had not experienced Birds of a Feather Discussions (BoF) before at a conference and I am absolutely amazed by the idea. Before the conference started the attendees were invited to propose ideas for discussions keeping in mind that BoF sessions might have the following scope:

  • Bringing together a niche community of interest;
  • Exploring an idea for a project, a standard, a piece of software, a book, an event or anything similar.

I proposed a session about sharing of personal/sensitive data. Luckily, the topic was selected for a discussion and I co-chaired the discussion together with Fiona Nielsen from Repositive. We both thought that the discussion was great and our blog post from the session is available here.

And again, I was very sorry to be the only attendee from Cambridge at the conference. There were four parallel discussions and since I was chairing one of them, I was unable to take part in the others. I would have liked to be able to participate in discussions on ‘Data visualisation’ and ‘Metadata Schemas’ as well.

Workshops: Appraisal, Quality Assurance and Risk Assessment

The last day was again devoted to workshops. I attended an excellent workshop from the Pericles project on the appraisal, quality assurance and risk assessment in research data management. The project was about how an institutional repository should conduct data audits when accepting data deposits and also how to measure the risks of datasets becoming obsolete.

These are extremely difficult questions and due to their complexity, very difficult to address. Still, the project leaders realised the importance of addressing them systematically and ideally in an (semi)automated way by using specialised software to help repository managers making the right preservation decisions.

In a way I felt sorry for the presenters – their project progress and ambitions were so high that probably none of us, attendees, were able to critically contribute to the project – we were all deeply impressed by the high level of questions asked, but our own experience with data preservation and policy automation was nowhere at the level demonstrated by the workshop leaders.

My take home message from the workshop is that proper audit of ingested data is of crucial importance. Even if there is no automation of risk assessment possible, repository managers should at least collect information about files being deposited to be able to assess the likelihood of their obsolescence in the future. Or at least to be able to identify key file formats/software types as selected preservation targets to ensure that the key datasets do not become obsolete. For me the workshop was a real highlight of the conference.

Networking and the positive energy

Lots of useful workshops, plenty of thought-provoking talks. But for me one of the most important parts of the conference was meeting with great colleagues and having fascinating discussions about data management practices. I never thought I could spend an evening (night?) with people who would be willing to talk about research data without the slightest sights of boredom. And the most joyful and refreshing part of the conference was that due to the fact we were from across the globe, our discussions diverted away from the compliance aspect of data policies. Free from policy, we were able to address issues of how to best support research data management: how to best help researchers, what are our priority needs, what data managers should do first with our limited resources.

I am looking forward to catching up next year with all the colleagues I have met in Amsterdam and to see what progress we will have all made with our projects and what should be our collective next moves.

Summarising, I came back with lots of new ideas and full of energy and good attitude – ready to advocate for the bigger picture and the greater good. I came back exhausted, but I cannot imagine spending four days any more productively and fruitfully than at IDCC.

Thanks so much to the organisers and to all the participants!

Published 8 March 2016
Written by Dr Marta Teperek

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Sharing personal/sensitive research data

Sharing research data comes with many ethical and legal issues. Since these issues are often complex and can rarely be solved with one size fits all solutions, they tend not to be addressed as topics of conferences and workshops. We therefore thought that gathering of data curation professionals at IDCC 16 would be an excellent opportunity to start these discussions.

This blog post is our informal report from a Birds of a Feather discussion on sharing of personal/sensitive research data which took place at the International Digital Curation Conference in Amsterdam “Visible data, invisible infrastructure” on 23 February 2016.

The need for good models for sharing personal/sensitive data

Many funders and experts in data curation agree that sharing personal and sensitive data needs to be planned from the start of research project in order to be successful. Whenever it is possible to anonymise research data, this is the advised procedure to be followed before data is shared. For data which cannot be anonymised, governance procedures for data access need to be established.

We were interested to find out what are the practical solutions around sharing of personal/sensitive data offered by data curators and data managers who came to the meeting. To our surprise, only two data curators admitted to provide solutions for hosting of personal/sensitive data. Among these two, one repository accepted only anonymised data. The rest were currently not making personal/sensitive data available via their repositories.

Why is sharing personal/sensitive data so difficult to manage? Three main issues were discussed: anonymisation difficulty, problems with providing managed access to research data and technical issues.

Anonymisation difficulty

There was a lot of discussion about data anonymisation. When anonymising data one has to consider both direct and indirect identifiers. One of the data curators present at the meeting explained that their repository would accept anonymised data providing that they had no direct identifiers and maximum three indirect identifiers. But sometimes even a small number of indirect identifiers can make participants identifiable, especially in combination with information available in the public domain.

So perhaps instead of talking about data anonymisation one should rather focus on estimating the risk of re-identification of participants. It would be useful for the community if tools to perform risk assessment of participant re-identification in anonymised datasets were available to provide data curators with means to objectively assess and evaluate these risks.

Problems with managed access to research data

If repositories accept sensitive/personal research data they need to have robust workflows for managing access requests. The Expert Advisory Group on Data Access (EAGDA) has produced a comprehensive guidance document on governance of data access. However, there are difficulties in putting this guidance into practice.

If a request for data access is received by a repository, the request will be forwarded to a person nominated by the research team to handle data requests. However, research data are usually expected to be preserved long-term (5 years plus) and such long term periods are often longer than the time researchers spend at their institutions. This creates a problem: who will be there to respond to data access requests? One of the institutions accepting sensitive/personal data has a workflow in which the initial request is forwarded to the nominated person. If the nominated person is no longer available, the request is then directed to the faculty’s head. However, this also creates problems:

  • Contact details for the nominated person need to be kept up to date and researchers leaving the post might not remember to notify the repository managers.
  • The faculty’s head might be too busy to respond to requests and might have insufficient knowledge about the data to be able to manage access requests effectively.

Technical issues and workflows if things go wrong

There are also technical issues associated with sharing of personal/sensitive research data. One of the institutions reported that due to a technical fault in the repository system, restricted research data was released as open access data and downloaded by several users (who did not sign the data access agreement) before the fault has been noticed.

Follow up discussions led to a reflection that a repository can never be 100% sure of security of personal/sensitive data. Even assuming that technical faults will not happen, repositories can be also subject to hacking attacks. Therefore, when accepting personal/sensitive data for long term preservation, repository managers should also assess risks of data being inappropriately released and decide on a suitable risk mitigation strategy. Additionally, institutions should have workflows in place with procedures to be followed shall things go wrong and restricted data is inappropriately released.

Other issues

Apart from the topics mentioned above we discussed other issues related to sharing personal/sensitive research data. For example:

  • What workflows do organisations have in place to check that data depositors have the rights to share confidential research data or data generated in collaboration with other third parties (external collaborators, external funding bodies, commercial partners)?
  • How do we properly balance the amount of checks required to validate that the data depositor has the rights to share and not discourage data depositors from sharing their research via a repository?
  • Or, if research data cannot be safely shared via a repository, do organisations offer the possibility of creating a metadata-only records to facilitate data discoverability?
  • What are the implications for DOI creation?

Actions

Our discussions revealed that there are clearly more questions than answers available on how to effectively share personal/sensitive data. Therefore it is important that we, as the community of practitioners, start developing workflows and procedures to address these problems.

SciDataCon 2016 (11-13 September 2016) is organising a call for session proposals (deadline: 7 March) and we would like to propose a session on sharing of personal/sensitive data. If you have any practice papers that you would like to propose for this session please fill in a google form here. Please note that the google form is to submit your proposals for the session to us (it is not an official submission form for the conference). We will use your proposed practice papers to form a session proposal for the conference.

Possible topics for practice papers for the session:

  • What are the workflows for sharing commercial and sensitive data via repositories?
  • How is your organisation trying to balance between protection of confidential data and encouragement for sharing?
  • What safety mechanisms are there in place at your organisation to safeguard confidential data shared via your repository?
  • What are the workflows and procedures in place in case confidential/restricted/embargoed data is accidentally released?
  • What are adhered to ensure that data depositors have the rights to share confidential research data or data generated in collaboration with other third parties (external collaborators, external funding bodies, commercial partners)?
  • How do organisations balance the amount of checks required to validate that the data depositor has the rights to share and not to discourage data depositors from sharing their research via a repository?
  • Other case studies/practice papers on the subject

Resources:

Published 29 February 2016
Written by Fiona Nielsen, CEO at DNAdigest and Repositive and Marta Teperek, Research Data Facility Manager at the University of Cambridge
Creative Commons License

 

In conversation with Wellcome Trust and CRUK

On Friday 22 January Cambridge University invited our two main charity funders to discuss their views on data management and sharing with Cambridge researchers. David Carr from the Wellcome Trust and Jamie Enoch from Cancer Research UK came to the University to talk to our researchers.

The related blog ‘Charities’ perspective on research data management and sharing‘ summarises the presentations Jamie and David gave. After this event, a group of researchers from the School of Biological Sciences and from the School of Clinical Medicine at the University of Cambridge were invited to ask questions about the Wellcome Trust data management and sharing policy and CRUK data sharing and preservation policy directly of David and Jamie.

This blog is a summary of the discussion, with questions thematically grouped. These questions will be added to the list of Frequently Asked Questions on the University’s Research Data Management Website.

In summary:

  • It is not recommended that researchers simply share a link and release the data when requested. Research data should be available, accessible and discoverable.
  • The first responsibility is to protect the study participants. The funders provide guidance documents on sharing of patient data. Ethics committees also provide advice and guidance on what data can be shared. In principle, patient data should be safeguarded, but this should not preclude sharing. There are models for managed access to data that allow personal/sensitive data to be shared for legitimate purposes in a safe and secure manner.
  • The funders do not want to prevent new collaborations. When sharing data they recommend data generators provide a statement in the description of the data that they are willing to collaborate
  • It is recognised that it is often appropriate for researchers to have a defined period of exclusive access to the data they generate, but this should be determined by disciplinary norms. Any exemptions or delays have to be justified on a case by case basis, ideally at the outset of the project.
  • The funders expect research data that supports publications to be made accessible and publications should have a clear statement explaining how to access the underlying research data.
  • However researchers need to decide what is useful to be shared considering the effort of preparing the data for deposit and of sharing the data. If nobody is going to use the data, sharing is not a good use of researcher’s time.
  • Discipline-specific data repositories, where these exist, are recommended preferentially over general purpose or institutional repositories
  • Biosharing is an excellent resource with references to discipline-specific metadata schemas.
  • Staff members whose role is to manage data is an eligible cost on a grant
  • There are no funds for sharing data from old projects, although there are exceptions on a case by case basis
  • The funders are considering monitoring data management plans but their current primary goal is to encourage people to think about data management and sharing from the very start of the project

Access to research data

Q: Are funders benefiting from the expertise of organisations such as UK Data Service when providing advice on data access? UK Data Service has been managing controlled access to research data for a long time and it would be advantageous to benefit from their expertise.

A: Yes, we are in discussion with the UK Data Service. We are also working with the UK Data Service to consider whether it might be appropriate for hosting data from other disciplines beyond social science. We also believe there is significant scope to share lessons and best practices for data sharing between the social and biomedical sciences.

Q: Could we just share research data only when asked for it?

A: This is not a recommended solution: research data should be available, accessible and discoverable. Data access controls and criteria for what needs to happen for the access to be granted have to be made clear in metadata description.

Q: I have patient data which has to be stored in a secure space. I always say in my data management plan that I cannot share my data. I would like to get ethical guidance which will explain to me how to share these data. It is very easy to say that data cannot be shared. I would like to share my data, but I would like to do it properly. With patient data it is extremely difficult, especially with genomics data, where there is a risk that patients can be identified.

A: Sharing of clinical data is not easy. Both Wellcome Trust and Cancer Research UK are helping to drive a great deal of work which is considering access and governance models through which sensitive patient data can be made available for research in a safe, secure and trusted manner. They provide guidance documents on sharing of patient data. Safety of patients and patients’ data is important. Ethics committees also provide advice and guidance on what data can be shared.

Q: What about sharing of physical materials? I have received a request to share a culture derived from a patient material, but the Ethics Committee did not approve sharing of this material. What shall I do?

A (Peter Hedges, Head of Research Office): If your ethical approval says that you cannot share that material, you cannot share it. Your first responsibility is to protect your study participants.

Q: If I share my data via a repository and people can simply download my data, I can no longer collaborate with them to work on the data and I have lost the possibility of getting credit for my data.

A: Nobody wants to prevent new collaborations from happening. A solution might be to add a statement that you are willing to collaborate in the description of your data. Your data requestor might be interested in collaborating, simply because you know your data the best. Funders also expect that the data re-used by others is appropriately acknowledged/cited, and they want to ensure that due credit results from the secondary use of data.

Quality control of research data

Q: If researchers start sharing unpublished research data via data repositories there is a risk that these data will not be of good quality as they will not be peer-reviewed.

A: Authors of unpublished data can simply state in the data description that the item was not peer-reviewed. If applicable, funders also encourage reciprocal links between publications and supporting research data.

What data needs to be shared and when?

Q: If researchers start to share everything there will be a lot of useless data available in data repositories. How to prevent a flood of useless data on the internet?

A: We would like researchers to decide what data is useful to be shared. If nobody is likely to use the data, sharing is not a good use of researcher’s time. Repositories also need to make decisions over what is worth keeping over time.

Comment (Peter Hedges, Head of Research Office): The Research Council UK focuses on research data supporting publications and this is what we recommend to researchers: share research data which underpins publications.

Q: Are we expected to share large datasets resulting from bigger projects (databases, long-term datasets) or data supporting individual publications?

A: We expect research data that supports individual publications to be made available with a hyperlink to the data. We also want researchers to consider and plan more broadly how they can make data assets of value resulting from our funded research available to others in a timely and appropriate manner.

Q: What about images? Is it useful to share them? It involves a lot of time to organise images. Besides, a single confocal picture with multiple layers is 1GB. In theory it is possible to share all raw data and all raw images, but who would want to look at them? 10 figures of 10 images is already 100 GB of data. Where would I store all these images, who is going to use these data and how am I going to pay for this?

A: The effort of preparing the data for deposit and of sharing the data should be proportionate to the potential benefits of data sharing. Researchers need to decide what is useful to be shared, following disciplinary best practices and norms (recognising that disciplines are in very different places in terms of defining these).

Q: Is there a set amount of time for exclusive use of research data?

A: Researchers should adhere to disciplinary norms. For example, in genomics research data is frequently shared before publication (sometimes under a publication moratorium which protects the data generator’s right to first publication). Any exemptions or delays have to be justified on a case by case basis.

Comment (Peter Hedges, Head of Research Office): Research is competitive. Sometimes it might be useful for researchers to know who wants to get the access to data and what do they need them for.

Cost of data sharing

Q: Can I ask in my grant for a staff member to help me with data management?

A: Yes, this is an eligible cost on grant applications: you can request a salary to support a research data manager for your research project, as long as it is justified.

Q: According to CRUK policy, costs for data sharing can be budgeted in grant applications only from August 2015. What about research data from older projects, when these costs were not eligible in grant applications? Is there any transition fund available to pay for this?

A: Unfortunately, there are no additional funds to pay for these costs. Researchers who have older datasets that might be of significant value to the community should contact CRUK – all requests for support will be considered on a case by case basis.

Q: Wellcome Trust encourages data sharing and data re-use, but does not allow for costs of long-term data preservation to be budgeted in grant applications. This does not make sense to me.

A: We are still reviewing our policy on costs of data management and sharing and we might be revisiting this issue – however, it is problematic for us to consider estimated costs for preservation that extend before the life-time of the grant. Our understanding is that costs of long-term data preservation are often less significant than costs of initial data ingestion by the repository (and we will cover ingestion costs).

Q: Who is then going to pay for the long-term data storage?

A: Wellcome Trust funds some discipline-specific repositories, but this is done jointly with other funders. We support bigger undertakings and we are also working with partners to develop platforms for data sharing and discoverability in some priority areas (notably clinical trials). Cancer Research UK pays for some long-term storage options, if these are justified for particular needs of the project. These decisions are made on a case by case basis, depending on how the costs are justified and whether these are directly related to the scientific value of the project.

Metadata standards

Q: At the moment there are many general purpose and institutional repositories, which are not well structured. To support efficient re-use of data it is important to use structured data repositories and adhere to metadata standards. What are funders’ opinions about this?

A: Wherever possible, discipline-specific data repositories should be used preferentially over general purpose or institutional repositories. Adherence to discipline-specific metadata standards is also encouraged. It has to be acknowledged that development of well-structured data repositories is very resource-intensive and not all disciplines have good quality repositories to support them. For example, it took over 30 years to adapt unified metadata standards at Cambridge Crystallographic Data Centre. The time need to properly solve problems should never be underestimated.

Q: Are funders planning to provide researchers with a list of recommended schemas for metadata?

A: Biosharing is an excellent resource with references to discipline-specific metadata schemas. It is a useful suggestion to include a reference to Biosharing on our website.

Policy implementation

Q: Are you planning to monitor researchers’ adherence to data management plans? For example, the BBSRC does not have the manpower to check all data management plans manually, but they are planning to create a system to check if data has been uploaded automatically.

A: We are considering this. At the moment we require data management plans with the primary goal to encourage people to think about data management and sharing from the very start of the project.

Published 5 February 2016
Written by Dr Marta Teperek, verified by David Carr and Jamie Enoch
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